BACKGROUND

The charity Struggle Against Muscular Dystrophy was set up by a committee of volunteers from a variety of professional backgrounds in 2008. Shocked by the lack of public awareness of the disease and the chronic shortage of funding for research into Muscular Dystrophy the committee took the decision to apply for official charitable status in order to formalise our efforts to address these core issues.

VISION

Our vision as a charity is to ultimately improve the treatment, quality of life and long term outlook for persons affected by Muscular Dystrophy through awareness, research, education and advocacy.

OBJECTIVES

We have two main objectives.

1. To increase public awareness of Muscular Dystrophy through media, educational and fund-raising campaigns.

2. To direct the money we raise to key research projects and drug trials which will further scientific understanding of Muscular Dystrophy, with a view to bringing potential life enhancing drugs to this generation of Muscular Dystrophy sufferers.

VALUES

S.A.M. is unique in that we have established ourselves as a zero cost charity.* We have no overheads, no salaries, no administration fees. Everyone involved with the charity gives their time, expertise, products and services for free.

All of the money we raise will help fund research into Muscular Dystrophy.

PARTNERSHIPS

SAM have created a strategic alliance with international advocacy group CureCMD in order to drive forward our efforts. We are now delighted to say that we hope to work closely with them to help synergise fundraising efforts, provide support to the CMD community, attract scientists to the area of CMD research and improve the standards of care for CMD families. Our ultimate goals are the same  - to find effective treatments and eventually a cure for Congenital Muscular Dystrophy.

Struggle Against Muscular Dystrophy Registered Charity no. XT11760