CureCMD

SAM has created a strategic alliance with international advocacy group CureCMD in order to drive forward our efforts. We are now delighted to say that we hope to work closely with them to help synergise and direct fundraising, provide support to the CMD community, attract scientists to the area of CMD research and improve the standards of care for CMD families. Our ultimate goals are the same - to find effective treatments and eventually a cure for Congenital Muscular Dystrophy.

In July 2009 CureCMD with support from SAM brought together over 80 of the world's leading clinicians, researchers and scientists in the field of neuro-muscular disease to a 3 day conference at Emory University in Atlanta. By bringing researchers together internationally and pulling together the collective bodies of knowledge and raising funds we hope to be in a position to bring greater focus and direction to research into treatments and an eventual cure for CMD.

"Cure CMD's mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with CMD's." (Richard Cloud, Chairman CureCMD)

For more information on CureCMD and current research and CMD information please go to the website www.curecmd.org.

If you are affected by CMD please register TODAY on the CMD Registry. (www.cmdir.org)